Category: Chronic Illness

Anxiety, Belief, Bible, Choices, Chronic Illness, Common Courtesy, Common Sense, Community, Consequences, Coronavirus, Culture, Emotional Health, Faith, Health, Humility, Pandemics, Prayer, Quotes, Relationships, Responsibility, Spirituality, Thoughts From the Porch, What Can I Do

Not Today…

gregoryjoel

Today was supposed to be the big day for my wife, Margaret. She’s dealt with severe, chronic pain in her neck and her back for quite some time. Her long awaited surgery to relieve some of the pain was supposed to take place today, but COVID reared its ugly head and has put it off once again. We got the call late last night that her pre-surgery COVID test had come back positive, and the surgery would have to be rescheduled.

This was a devasting blow to us both. The surgery was scheduled in September of last year – that’s how long it took to schedule a surgical suite. COVID pushed many “elective” surgeries off schedule – just because it isn’t life threatening means it’s elective. “Elective” loses its meaning when it comes to living in constant pain and drastically limited mobility. There’s no telling how long this will take to reschedule.

We had both prepared ourselves emotionally and physically for this surgery. All the pre-op steps were followed and now plans are again on hold. Any time we’re talking about an 8-10-hour surgery there’s some degree of emotional preparedness. It’s scary and stressful even though the hoped-for results are beneficial. All Margaret could do was cry when the call came last night.

We are mightily disappointed, but our faith has made this somewhat easier to bear. God’s timing is always perfect. We know that, but it doesn’t take away the frustration and stress the situation creates. The sad thing about all of this is that Margaret and I are fully vaccinated and boosted. I’ve tested a couple of times in the few weeks leading up to the 1st just in case. We’ve been extremely careful to wear masks and maintain social distancing. Unfortunately, we live in a place where very few people follow the CDC safety protocols maintaining that it’s their “right” to be inconsiderate of others.

I suppose that’s why I feel so angry right now – so much of the death and misery of COVID could have been prevented. Margaret could be on her way back to pain relief if simple measures could’ve been taken by us all. Vaccination, masking, and social distancing should never have been a “rights” issue. It should have never been a political issue. It should have always been a public health problem addressed by scientific fact and more than anything else, should have been a cooperative effort by our community to save lives and save us from the tyranny of the pandemic. Knowing this could have been prevented but there are those who think it’s their “right” to be selfish fools and refuse common sense and care for others infuriates me – especially when they choose to wear the moniker of Christian.

“Think of yourselves the way Christ Jesus thought of himself. He had equal status with God but didn’t think so much of himself that he had to cling to the advantages of status no matter what. When the time came, he set aside the privileges of deity and took on the status of a slave, became human! Having become human, he stayed human. It was an incredibly humbling process. He didn’t claim special privileges. Instead, he lived a selfless, obedient life and the died a selfless, obedient death – and the worst kind of death at that – a crucifixion.” Phillipians 2.5-8 (The Message)

What you do today doesn’t only affect you…

Anxiety, Belief, Chronic Illness, Common Courtesy, Common Sense, Community, Consequences, Coronavirus, Culture, Emotional Health, Faith, Health, Hope, Immunology, Neighbors, Pandemics, Politics, Responsibility, Service to Others, Simplicity, Spirituality, Survivors, Thoughts From the Porch, What Can I Do

Be Where Your Feet Are…

gregoryjoel

Thoughts from the Porch

Things in our world have changed drastically in the last few days. Don’t worry, I shan’t become one of the voices bemoaning the current toilet paper shortage. I’ve heard enough about that. The shelves are still empty and may be in the coming days. We’ve had to be a bit more resourceful about such matters – although I need to remind our family members not to throw baby wipes down the toilet.

I also need to remind everyone that COVID-19 is a respiratory illness, not a gastro-intestinal one. It’s unrealistic to believe that you’ll use up that truckload of toilet paper you bought in this lifetime, much less during a two-week quarantine. Please use your head, exercise a bit of common sense, and leave some for the rest of us. That’s all I will say about that…

I am trying, like everyone else, to adjust to the rapidly changing situation with the coronavirus pandemic. As I drove to my regular 9:00 Sunday morning meeting I noticed how few cars there were on the road. It’s never heavy at that time and day but it was eerily quiet this Sunday. State and county health departments are following Center for Disease Control (CDC) guidelines and limiting indoor gatherings to ever smaller numbers of people to prevent the spread of the virus. First, it was crowds of 500, then 250, and now 50. Moments ago, the White House said to avoid crowds of more than ten people and old folks should stay at home, period. Many churches were empty, opting for online or remote services instead. No wonder it was so ghostly quiet.

Photo by Fusion Medical Animation on Unsplash

Social distancing has become a new normal.

One’s personal space just got larger. All I have to do to get through a crowded grocery store aisle is sneeze or cough – both of which are consequences of springtime pollen – and everyone gets out of the way. Sometimes allergies are a good thing. The absence of hugs and handshakes are painful though.

If it seems I’m being a bit flippant about this whole pandemic thing, I can assure you that nothing is farther from the truth. I’m taking very seriously. I check all the boxes for being at risk of becoming gravely ill if exposed – I’m over sixty, a borderline diabetic, and have a compromised immune system. I’m cautious around others but I refuse to allow fear and misinformation make my decisions for me. God knows, there’s enough of that already.

I hope to exercise a little common sense and get through this physically unscathed. It’s possible that most of us will do likewise. Unfortunately (and realistically), some will become ill and some will die. That’s what just the way this virus operates.

Then there’s the other consequences to be borne by people who can’t afford fifteen days or more of childcare, business shutdowns, and lengthy quarantines. Statistically, the vast majority of folks live paycheck to paycheck with little, if any cushion, for times like these. There will be some of you for whom this is extremely inconvenient. For most though, it will be life-altering and in many cases, devastating.

Photo by Markus Spiske on Unsplash

The physical, mental, emotional and economic outlook is bleak, and not only because there’s no toilet paper to be found – given the severity of the situation, you’d think cleanliness in one’s nether regions would be of less importance – but all is not lost.

I’ve been spending time monitoring social media and the comings and goings around my community. I discovered that for every tale of bare supermarket shelves, panicked hoarding, and greedy resellers there are ten or more stories of the coronavirus bringing out the best in people. Here’s what I mean:

  • My “Next Door” neighborhood app is blanketed with messages of people wanting to help those who are older or immune compromised with getting groceries, medicines, etc. One of my neighbors living on Social Security put a “Need help” post up ad I’ve watched the constant stream of cars come to her home to deliver assistance.
  • People offering to help with child-care for those who are required to work even though their kid’s Spring break has been extended in most districts.
  • Companies like Apple that are still paying their employees while their stores are closed for the next two weeks.
  • Each of the countless churches and other organizations that open their food pantries for anyone struggling with the current crisis.
  • I was speaking with my ex-daughter-in-law yesterday and she told me of simply checking on the kid’s friends who were having to stay home alone due to the extended break and parents who couldn’t afford to miss work.

Thankfully, the list continues. I don’t know if it’s the same elsewhere. I would like to think so.

This pandemic and how to deal with it is uncharted territory for most of us. We’ve had scares in the past – bird flu, swine flu, and SARS/MERS (also in the coronavirus family) – but we haven’t seen a true pandemic in our lifetime. Despite the current Administration’s inept handling of the crisis and the plethora of wild conspiracy theories, lies, and minimalizations accompanying it, people show a resiliency that offers a glimmer of hope for human beings in general. My prayer is that we’ll fan that flame and take care of one another.

So, my friends, be kind to one another and yourselves. Don’t panic. “Be where your feet are”, as my wife often reminds me. Don’t rush or hoard. Wash your hands, cover your mouth when you cough, and think of others. Step back, take a deep breath and we’ll all walk through this one together. It may not eliminate COVID-19 but it sure can’t hurt…

Acceptance, Christianity, Chronic Illness, Community, Courage, Emotional Health, Faith, Gratitude, Health, Hope, Monday Mornings, Recovery, Self-Acceptance, Service to Others, Sobriety, Spirituality, Stories, Thoughts From the Porch, Transformation, What Can I Do, World AIDS Day 2018, Writing

What defines us?

gregoryjoel

Thoughts From the Porch: I’ve spent a great deal of time in reflection over the last couple of days. I’ve experienced a lot of gratitude this weekend. Quite honestly, I wondered whether I should share it with a wider audience.

Saturday, December 1st was the thirtieth anniversary of Worlds AIDS Day. The theme this year was “Know your status”. According to the World Health Organization, over a million people a year die from AIDS because they either didn’t know their status or started treatment too late. HIV/AIDS doesn’t need to be a death sentence. Advances in treatment have made HIV/AIDS a treatable chronic condition. AIDS patients know that adherence to treatment regimens help them lead long, productive, happy lives. But that doesn’t happen is one doesn’t know their status.

You can only address the problem when you recognize the problem.

AIDS rarely makes the news anymore. Lack of coverage doesn’t mean it’s gone away. In fact, in sub-Saharan Africa, a girl between the ages of15 and 24, becomes infected with HIV every minute of every day. Every minute. Every day.

Mark World AIDS Day 2018 by “knowing your status”.

Having said that, December 1st also marks thirteen years since my personal rebirth. On that day I began a journey I thought impossible for someone like me. I’m one of the few who get to live “two lives in one lifetime” as Margaret often reminds me. It was ironic that it was also World AIDS Day, but I wouldn’t see the irony until five months later…

Professionally, I refrain from discussing the events of all those years ago for a couple of reasons. One, to do so is somewhat suicidal in the business world. Self-disclosure, particularly of one’s failures, even when followed by success, is frowned upon in the professional community. Secondly, many misconceptions and fear lead to conscious and unconscious prejudices that are somewhat detrimental to business owners such as me.

However, I have difficulty separating my professional life from my personal life. The events of my sixty years, and particularly the last thirteen of them, have shaped who I am today.

 Saturday marked thirteen years of my recovery journey, and more importantly, my relationship with God. That may not be a big deal to many folks, but it is to me. I never thought it possible. Looking back, I’m incredibly grateful for the “gift of desperation”.

 I remember when I celebrated my first year in recovery, I proudly told my mom I hadn’t used any mind-altering substances for a year. She looked at me and said, “So, I haven’t used them in seventy-seven years”. She always had a way of putting things in perspective. Seeking recognition for something that most people do normally seems kind of foolish when I think about it.

However, to diminish the miracle of recovery would be just as unwise. I still remember the hopelessness, degradation, and desperation I felt the day before I began the recovery journey. I also know what it is to experience the depth of God’s infinite grace. To refrain from sharing it would be quite selfish, and selfishness is not something I wish to entertain any longer. Besides, the more I share, the more there is to receive. Go figure. The more I give the more I have. Let that one sink in…

Life didn’t stop showing up just because I began the recovery journey. I’d been clean and sober for about five months when the consequences of my past caught up with me. I was diagnosed with AIDS. Not HIV positive, mind you, but full-blown AIDS.

The level of CD-4, or T-cells, those wonderful components of the immune system the HIV virus attacks and destroys, determines whether one receives an HIV or AIDS diagnosis and thus, the treatment protocol. Simply put, AIDS patients have a CD-4 count of less than two hundred, while HIV positive individuals have a count above the two hundred mark.

Everything I knew at the time about HIV/AIDS was that people who had it died. Thirteen years later, I see it a little differently. I learned my status and I could do something about it.

 I live a pretty marvelous life these days. My wife Margaret and I are what’s called a “magnet couple”. She’s negative and I’m positive, HIV speaking. I’m a good husband, father, and grandfather, at least I hope so. I have a wealth of wonderful relationships that I didn’t think possible all those years ago. I’m not defined by my failures, but rather, refined by them. No one should be. Think about that next time you look in the mirror or think about the person in front of you…

 

 The irony of having the same clean date as World AIDS Day isn’t lost on me. It’s a constant reminder that choices have consequences. It enables me to make better choices (at least I hope so…). It’s also a daily reminder of “who’s” I am and that His grace is what defines me today…

Autumn, Awe, Bible, Business, Christianity, Chronic Illness, Communication, Community, Culture, Dogs, Emotional Health, Faith, Fall, Family, Friendship, Gratitude, Health, Listening, Neighbors, Prayer, Recovery, Relationships, Simplicity, Spirituality, Texas, Thoughts From the Porch, Uncategorized, Unity Unlimited, Inc., What Can I Do

Who’s Your Village?

gregoryjoel

black metal armchair
Photo by Michael Morse on Pexels.com

Thoughts from the Porch: The leaves are starting to cover more of the yard more quickly than they did a couple of weeks ago. The blades of grass, which would shoot toward the sky after every rain last month have slowed to a crawl in their growth. Mowers scurrying along the freeway right-of-way signal colder weather is on the way. Despite the above-average temperatures, Fall is on its way to North Texas.

This week has been hectic (in a good way, for the most part) and the time on the porch is treasured beyond imagination. Margaret and I have been able to get out more, for which I’m grateful. I love to her out and about. The tender’s been stoked, and the brakes are off on Opal’s Farm. The wheels are turning faster now and building speed toward the ribbon-cutting ceremony ahead. The only blot on the week has been a persistent plumbing problem here at home. At least I’m able to be here to take care of it.

As I started my day with a cup of coffee, I felt intense gratitude for the day I’ve been given. I get to meet and work with some amazing people. I’ve often said I prefer the company of dogs and horses to most humans, and that seems to follow on days that I pour over my newsfeed and read about the pervasive anger and divisiveness in our society. I could go on a major rant about it all, but why?

Sometimes I feel a little like the Old Testament prophet, Elijah, in 1 Kings 19. He had seen so much of the selfish decadence of his world that he felt like he was totally alone and persecuted. Lord knows I’ve been there. Events can be overwhelming. I feel isolated, cynical, and sad. Depression clouds my view of the world. It often feels like, “What’s the use?”.

(side note: continuing feelings of “what’s the use, worthlessness, sadness and isolation are nothing to be trifled with, especially when nothing seems to help. It may be something for which relationships, gratitude, and spiritual pursuits aren’t enough. Please seek professional guidance)

Fortunately, Elijah’s story didn’t end there. Yours and mine doesn’t have to, either. God reminded him that he wasn’t alone. First, by speaking in a still, small voice so he was reminded he wasn’t spiritually alone. Second, by reminding him he wasn’t physically alone. In fact, God pointed to all the other people, 7,000 in his case, who had the same desire to make things better. That’s what God does and, continues to do for me on a regular basis.

Over the last several weeks many fantastic and selfless people have crossed my path: people who look to the common good and seek how to be of service. Opal’s Farm is the pathway God has granted me. Beginning with Ms. Opal, the farm’s namesake, I’ve met a succession of people who have blessed me in ways they’ll probably never know. God hasn’t left any of us alone. The world is filled with people who strive to make our community a better place by serving other, but I fail to take them into account. “You can’t see the forest because of all the trees…”

I write a lot about the people in my life and relationships. Probably more than you want to read, but I stress their importance, whether it’s personally, professionally, or spiritually. Mom used to tell me she could tell who I was by who my friends were. I didn’t appreciate her wisdom until I was older, but she was so right. The more I surround myself with great relationships, the better I become as a person.

My personal relationships keep my perspective positive, my business relationships sharpen my focus and service professionally, and my relationship with God expands my spiritual life. What are your relationships doing for you today? Are they a priority in your life? Are you grateful?

Anxiety, Autumn, Awe, Christianity, Chronic Illness, Emotional Health, Faith, Family, Generations, Gratitude, Growing Up, Honor, Jesus, Love, Marriage, Monday Mornings, Prayer, Preparation, Relationships, Seasons, Stories, Thoughts From the Porch, Trust, Uncategorized, Weddings, Wellness, Writing

Never-ending Honeymoons…

gregoryjoel

Thoughts From the Porch: Yesterday was the big day for our son and our new daughter-in-law. We welcome Amanda into the family with tons of love and gratitude. She’s a beautiful, remarkable young woman and incredible addition to our family. We pray continued blessing and happiness for the Brandon and Amanda.

close up of wedding rings on floor
Photo by Megapixelstock on Pexels.com

It was a beautiful ceremony with pastoral surroundings. Despite the rain and grey skies, the wedding and reception went well, and a good time had by all who attended. We received a text from the happy couple this morning as they boarded the plane bound for the honeymoon. The best thing about the whole affair? It’s over!

I’m not a crabby old man mind you. I love weddings. I’ve had the privilege of performing many wedding ceremonies over the years. Couples, especially the brides, look more stunningly beautiful than ever, and I get to see the love in their eyes up close. There’s something incredibly holy about that moment. I’m always awed by the power and beauty I witness. It was no less holy seeing it from the attendee’s point of view.

However, I’m happy it’s over. The lead up to the big day was stressful for everyone in the family. It feels like a pressure valve a has been released and we can all breath again. No more worry about invitations, dresses, and food choices for the reception. After yesterday, Margaret and I slept in this morning. I can’t remember the last time I slept until 9:30! We spent an inordinate amount of time on the porch this morning. As I write this morning my thoughts are more about binge watching Netflix than finishing this post, so you may not be seeing this until Monday…

And so, it is Monday…

Monday has arrived, and it feels beautifully normal. Up early, coffee on, and time on the porch. I shall not bore you with the details. It feels like Fall though. For that I’m unbelievably grateful.

autumn autumn leaves blur close up
Photo by Vali S. on Pexels.com

Looking back at this weekend, I was reminded of my own marriage and how blessed I am. It will be our sixth anniversary in March. I know that doesn’t sound like a long time to folks who have been married for much longer, but it amazes me. I’m sure I’m not always the easiest person to live with.

Margaret and I had been friends for several years before we dated. I always wanted to go out with her, but quite frankly, I figured I was out of her league. I had been single for a long time and, because I had chosen to be public about my HIV status, I thought I’d remain that way. Being positive kind of screws up the whole dating thing. I’m not complaining, mind you, because looking back, I know God was preparing me for what was to come. I had to learn to love myself, and by His grace, my willingness, and an incredible group of men, I did. Loving myself allows me to love others fully. Maybe that’s why Jesus placed such importance on “loving others as you love yourself”.

During that time, He was also preparing Margaret. I guess it was no surprise that our courtship was short – only ninety-one days. Thanks to our many friends who banded together to pull off a gorgeous wedding in only eight days (many of you know the story), two became one. If such haste seems foolhardy, each day since has reaffirmed our (or at least my) decision. Apparently, we became a ‘magnet couple’ – I’m HIV positive and she’s is, and remains negative…

We’ve had some hurtles since our wedding day, most of them physical. A month after our wedding, I ended up in intensive care behind a post-operative meningitis infection for a month. It was touch and go. Margaret worried about planning a funeral a month after planning a wedding. Then a couple of years later, Margaret had complications from back surgery leading to chronic pain and decreased (and sometimes extremely little) mobility. Neither of us planned on these challenges, but it is what it is, right? All they are is speed bumps on this wonderful journey we began together.

Sometimes the challenges we face cause self-doubt. We’re not exempt, nor is anyone I know of. While Margaret isn’t an invalid by any means, there are days when she’s really hurting and needs more of my attention. I’m grateful that I work from home most days and can be there to help. She apologizes and wonders if I’m second-guessing getting married. I can say with absolute certainty that I’ve never had second thoughts. Yet, I can tell you that on the days I’m irritable, frustrated, or depressed I wonder if she’s rethinking this whole deal. Sometimes my brain is not my friend…

For both of us, self-doubt is fleeting, erased by the love we share. Feelings are one thing and, at least in my case, rarely have anything to do with reality. The reality is that I’m still awed that God could have blessed me so richly. I still get giddy when Margaret walks in the room. When I look into her eyes, I see the love there and I come back to reality quickly. I still can’t believe that she said yes…

I know that Saturday was Brandon and Amanda’s special day, but I need to tell you, it was truly special for me, too. Margaret stepped out of the bride’s room as we prepared to walk down the aisle. I was floored. She’d been locked away all day with the bride and bridesmaids getting ready for the ceremony. I saw my bride. She looked even more beautiful than the day we wed. I truly am the most blessed man in the world…

I hope that our kids have the same joy and love that Margaret and I share. If the vows they wrote for one another are any indicator, then I’m certain they will. If I could offer any advice to the newlyweds, it would be this: never lose you sense of wonder that your spouse chose to spend the rest of their life with you. When in doubt, remember how they looked at you on your wedding day, and perhaps more importantly, how you looked at them.

My prayer for you all is that you feel the butterflies and the awe every time the love of your life walks in the room…

animal beautiful biology bloom
Photo by Cindy Gustafson on Pexels.com